MyLifeLine.org offers cancer patients and caregivers support – or just that, a lifeline. MyLifeline.org keeps them connected to their support community, and keeps loved ones updated on treatment progress, without exhausting patient or caregiver.
The Colorado-based organization empowers cancer patients and caregivers to create private, personalized websites to keep family and friends updated on their treatment progress, and to build connection and community to support patients. And, now it’s easier than ever for Rocky Mountain Cancer Centers patients to use the free online tool.
Cancer patients and caregivers support
“We’re cancer-specific. We offer education, information, and resources for 100+ different cancer types,” Donziger says. MyLifeLine offers benefits such as:
- Members can add information — all reviewed by oncology nurses and social workers — about their particular disease to their website so friends and family don’t have to scour the internet, or feel sheepish about asking about a particular condition.
- Patients can build a “Helping Calendar,” where they can post their chemo or radiation schedule, visiting hours, even a caregiver relief day when friends can come help out. The calendar is an easy way for patients and caregivers to answer the ubiquitous question, “What can I do to help?” without feeling awkward, Donziger says.
- Patients can control who can sees information about their treatment and their progress. “You can have a closed or open site — if it’s closed, everyone needs to register in order to see information you post,” she says. “Every family impacted by cancer should have access to a safe, secure website.”
A Resource for Caregivers, Too
Donziger says she launched the website service to help cancer patients. But she’s learned that it’s a lifeline for caregivers as well. It often falls on caregivers to pay medical bills, coordinate appointments and transportation, and help manage treatment side effects — as well as handle a greater share of household chores, in many cases.
With that in mind, MyLifeLine has created a caregiver resource, designed to help with all those responsibilities. The Cancer Caregiver Toolkit offers information on topics from managing side effects to finding financial aid resources.
For Donziger, the success of MyLifeLine is a chance to pay it forward. After surviving ovarian cancer herself, “I’m an advocate for patients now. I want people to feel empowered, to feel that they’re not alone.”
Visit MyLifeLine.org to learn more.